Three times. I have collapsed today three times. I tried to get up this morning, I clearly remember my alarm going off, but I awoke on my closet floor. I guess my body just wasn’t ready for me to get up. So it made me go back to sleep making me rushed to get ready […]

Even with my blinds closed. Even with my sunglasses on. Even with the doors closed to brighter rooms. I’m still desperately trying to evade contact with the natural light that pours into my apartment. I have yet to discover a way to mount curtains around these awful blinds to prevent light coming through the sides. […]

For as long as I can remember, I’ve had a bin somewhere full of these multi colored stretchy bands. And just about everywhere you turn, there’s another one hanging somewhere. Looking back on the last 20 years, its increasingly obvious that my body just wasn’t built right. I can remember long before “migraine” was a […]

Funny, there’s no “self help” book for chronic conditions. Hell, we could all probably write a very different book with what we discovered on our own that helped us. The first time my doctor said “chronic” I didn’t understand it. I understand it now, but I wish I didn’t. But with chronic, there’s a lot […]

Please just stop. Stop trying to sympathize with me. Contrary to what you think, you’re coming off as an asshole. Your comments aren’t asked for. Your attitude certainly isn’t requested. Do you suffer from chronic migraine? Or any condition that causes chronic pain? Are you constantly left feeling fatigued even if you’ve just woken up […]