A Little Bit About Me…
For starters, I’m Alex.
To point out the obvious, I have a very disabling case of chronic migraine along with a few other chronic conditions that fluctuate and impact the way I comfortably live my life. A few years ago I took a step back from the demands of the world to prioritize my health. I left school and work, spent a portion of time completely bedbound, and began to slowly rebuild my health and adjust my outlook on life in order to carve out a space where I could thrive, even if medical advancements didn’t allow the thriving to exist without pain.
I’ve wanted to be a weather girl, a detective, a journalist, a psychologist, an architect, an interior designer, an astronaut, and a volcanologist.
I’ve been a waitress, a store manager, a tutor, an executive assistant of sorts, a design assistant, and a professional interior designer.
It’s safe to say that now, I am a writer. A painter. A horror enthusiast. A lunar photographer. A sometimes struggling plant mom. And a chef.
About My Blog:
A picture is worth a thousand words.
That’s how all of this began. It clicked, that in this journey I was destined to be on, I was alone. Alone in the understanding that everyone around me saw this “migraine thing” as black and white. How could it really be more than a headache. I mean just take an Advil, you’ll be fine, right?
There’s so much grey. So many layers in-between the positive and negative. So, I decided to stop voicing what I was going through in half thought out Facebook posts that only demonstrated those extremes.
With the advice of my best friend, the black and white photo montage of my blog was born. Every day, what if you only saw it in black and white? What would be missing from the story you were trying to tell?
Turns out, a lot was missing.
My blog has been a lot of things since it’s inception in the late winter months of 2018 – perhaps the best works were born in the earliest of entries. My writing has always been a therapeutic outlet, one I needed the most in what I consider “Chapter One” of my blog. This period was full of everything I wanted people to know about migraine and my experience. The ups and downs, the interaction between the sick and the surrounding society, and the self-realizations that came from various symptoms and events.
My blog began to transform as I went through the process of applying for, and being approved for SSDI. I wanted to alter my space, allow it to be a place others could come when they needed the resources I hadn’t had.
Throughout this time, I’ve shifted to prioritize my own healing and understanding what that word represents for me. Healing doesn’t come easy, it takes a really long time – maybe even our entire lifetime – and a lot of it is accepting that these conditions I write about, and those that I don’t, are inseparable from me and my life.
The best way to view this blog – if you’re really invested in my story this far – is to navigate to the “Featured Stories” tab where I’ve outlined the highlight reel of pieces published for easy reading.
Where I Go From Here…
My Life My Migraine has become an incredible resource, and I’ll continue to share as my own journey progresses, but much of the story continues elsewhere.
I have temporarily paused my Patreon page, but for more of the day to ongoings and ramblings you can find me over on Twitter @HemingwayMuse
Though my Patreon is paused, I continue to work towards the goals I outlined there. One of these goals is to get back into design work and work with other disabled people in understanding how my interior design background can serve our diverse disability community in creating real solutions and adapting the spaces around us to meet our needs, rather than forcing our bodies to contort themselves to fit the space. For progress on this goal, check out my design tab!
Beyond that, I hope to take the initiative even further to reimagine design education and improve existing design codes to be more inclusive.
“‘O me! O life!… of the questions of these recurring; of the endless trains of the faithless… of cities filled with the foolish; what good amid these, O me, O life?‘ Answer. That you are here – that life exists, and identity; that the powerful play goes on and you may contribute a verse. That the powerful play goes on and you may contribute a verse.” ~ Dead Poets Society/Walt Whitman
This is my verse.